Yesterday the doctor removed the breathing tube from Owen’s throat, and brought him out of the sedated state he was in for almost a week. He was still frightened and upset by all that was going on, so he was given something to calm him down. He still has an oxygen tube, but it is the kind that attaches to the outside of your nose. He had a good afternoon and night.

This morning Sarah said they were able to lower his oxygen in his nose to 60%. He is still taking meds to relax and partially sedate him. His stats look good and doctors are hoping to pull the feeding tube today as it is annoying him. He still doesn’t know whats going on and is having drug withdrawal symptoms. They are going to see if he wants to eat today or drink once they pull the tube from his nose. Thank you for your continued support, prayers, get well wishes, love and kindness.

Last night Seth stayed home and made an “Island of Sodor” , which is where Thomas the Train lives, for Owen. It will be a surprize for him when he gets to come home. Owen loves Thomas the Train, and plays with his for hours. Seth created this on plywood so the track can stay set up all the time, and just slide under his bed when it needs to be put away.

When Seth and Sarah got to the hospital this morning, the doctor told them they would most likely be removing the ventilator tube early this afternoon. Once they have him off of all the tubes, they can bring him out of the sedated state he has been kept in for a week. He will have to stay in the PICU for 48 hours after being awakened before he will be moved to the pediatric floor.

Amelia and I made a video for Owen this afternoon:

WE are hoping he will be able to see it tonight.

I went to the hospital with my son last night and stayed a few hours, talking to Owen and holding his hand. He is still fully sedated but they say he can hear us and knows that we are there. Seth took the sound track from Cars, the movie,to play for him, because that is his favorite music.

While we were there, the respiratory guy came in and told us he was going to turn back the amount of oxygen being delivered through the ventilator to see if Owen could maintain the proper blood gas levels on his own. We decided to wait until they came back to do the test for blood gases an hour later, and were very relieved when all the levels stayed the same with less oxygen being tubed in. It was a good positive thing.

Seth and Sarah went back and stayed all day today. They took some of Owen’s favorite books to read to him. One of the nurses on the floor had downloaded some songs that Owen likes onto her iPod and was playing them for him. I can say enough how much all the nurses, doctors, techs, and other employees at this hospital are committed to taking care of their smallest patient. One of the doctors who was on rotation to PICU last week, Judy, came by on her own time to check on him, and left a long handwritten letter to Owen’s parents.

We aren’t out of the woods yet, but we can see the edge of the forest now. Thank you all again for you prayers and concern for our little guy. It really means a lot to me.

When I bought my ticket to fly up here, I had no idea how long I would need to stay, so Amerian Airlines gave me wht they call their “compassionate fare”. It is the same amount dollar wise as their regular fare, butit allows me to change my flight as many times as necessary for me to stay as long as I need to with no fee. I initially booked round trip leaving to go home on Tuesday, which is tomorrow, but changed that today to Friday. And if the kids need me to stay longer, I can change it again.

And while Mummy and Daddy are spending all their time taking care of Owen’s needs, I am here taking care of Amelia, who will be two years old on May 24, our mutual birthday. This is the first time I have been able to make it up here to meet her, and because she doesn’t know me, it hasn’t been easy. I am just that mean old hag who won’t let her walk on the sofa. WE made some progress this afternoon when she gave me a kiss and a hug for the first time. Who knows if she’ll still like me tomorrow or not.

 

 

Seth and I went to the hospital last night to sit with Owen for a while. He is still listed in critical but stable condition, and is still completely sedated, but all his vital signs looked really good last night. There were no “brown blips” on the ventilator monitor, which means he was breathing on his own.

When we arrived, the night nurse was playing an Adele CD for him, and he was wiggling his feet in time with the music. Seeing that was very encouraging for me. We stayed for a couple of hours, and once my son was satisfied that Owen was comfortable and not getting worse, we came back home.

When we got up this morning and called to check, they said he did not have a fever during the night, and they were going to reduce the amount of oxygen to see how he does on his own. Thank you all for your continued prayers and thoughts. It really means a lot to our family.

I have been in Washington, D.C. since Thursday night, staying with my son at Andrews Air ForcBase while Owen is in the hospital fighting for his life.

Yesterday I went to the hospital with Seth and Sarah, my son and daughter-in-law, to visit Owen in the pediatric ICU at Walter Reed National Military Hospital in Bethesda, Maryland. It is about an hour drive from their home, so just the going back and forth is wearing on my son and his wife.

When I had to chance to go in the ICU, I spoke at length to the respiratory therapist, the nurse on duty and the two doctors who are charged with Owen’s care. All of them were optimistic, postive, and said that all signs indicated that he is better than was the day before.

I only got the first name of one of the doctors, Judy, and the last name of the other one, Ruck. Judy answered so many questions that I had.The following is a synopsis of my questions and the doctor’s answers, as best as I can remember them:

1. How often does this sort of thing happen after a tonsilectomy?

It is rare for complications after a tonsilectomy, but I do not believe that whatever is the matter with Owen has anything to do with the tonsilectomy surgery. I think that he was exposed to a virus before the surgery but had not presented any symptoms yet. We do not know yet what virus is causing this, but I am walking the samples we just took over to the National Institute of Health labortory across the street.

2. What medications is he on, and will there be any long term consquences from taking so many powerful antibiotics?

He is on Vancomycin, clindramycin, azithromycin, and ceftriaxone.When we don’t know the cause of infection, we give patients like Owen a combination of drugs to make sure there is a “safety net” so that any bug he might possibly have will be covered. Since we don’t know the cause of Owen’s illness, we are giving him that combination. If he were not allergic to penacyllin, we have to give him two antibiotics to take the place of it. One of the drugs (I can not remember which one she said) can do damage to the gall bladder, but that is a rare occurrance, and we are monitoring Owen for that. Another one can damage the kidneys, but again, that is rare, and we also monitoring him for that. Once we determine just what he has, we can discontinue the drugs he does not need.

3. What are these tubes and things attached to him?

He has a regular IV in his left arm for a saline drip to keep him hydrated. A blood pressure cuff on his right arm to monitor his blood pressure. There is a bigger IV in his groin that goes directly into an artery so that we can give him his medications faster. That IV is longer so that it has less probablilty of coming out. He has a breathing tube inserted down his throat to his lungs to provide oxygen and to help him breathe. And another tube down his throat directly to his stomach to feed him Pediasure directly to his stomach.

4. Can you explain all the numbers on the machines.

The doctor explained every number showing on the vital sign monitor, and how each number related to how Owen was doing. Even though I have seen those monitors on people every time I have been to visit in a hospital, and even had some of them on me from time to time, I never have asked about them and received such an indepth answer.

She then had the respiratory therapist explain all the information showing on the ventilor. They said Owen should be taking 30 breaths per minute, and he was at that time taking 38 breaths per minute. At the time he was moved to the ICU, he was taking more than 80 breaths per minute, so there has been a good bit of improvement since he was moved.

Also, there was one line where some of the “blips” were blue and some were brown, with more blue than brown. The blue ones are when Owen breathes on his own, and the brown ones were when the machine was doing the breathing, or helping him breathe.

5. How will you know when you can remove the ventilator.

We have him on a certain dosage number of oxygen. We will incrementally lower the oxygen levels being delivered. Once he can breathe on his own, and keep his oxygen levels at the correct rate, we can remove the ventilator.

6. How long will he be kept sedated?

He will be kept fully sedated until he is able to breathe on his own. The sedation also helps to keep him relaxed and reduces the amount of energy he expends.

There were lots more questions, but these were the most important to me. My son was with me while I was asking everything, and heard all the answers. He told me he would have never thought to ask all of that and thanked me for being there.

My son went back up to the hospital last night and stayed until well after midnight. He spoke to the doctors and , they said what he has is Human Metapneumovirus. Antibiotics don’t have any effect on that so they are going to discontinue those meds.  He continues to remain stable. Seth said he saw that he was pretty much breathing on his own now with almost no assistance. He’s still being fed with tubes and it looks like he has gained some color, he was very pale yesterday so that is good. They are keeping him sedated and he seems comfortable, and they are playing him some lullaby type music which is relaxing.

This morning when my daughter-in-law called, they said Owen’s blood pressure dropped during the night, so that they put him on blood pressure medication, but that everything else is stable and like it was yesterday.

Seth and Sarah have gone back to the hospital today, and I am here taking care of Amelia. I will update as soon as I know something different. Please continue to pray for Owen and his family. We all appreciate everything everyone is doing for us at this time.

 

 

 

When the phone rings in the night, you always brace yourself for the worst, or at least I do . So when it rang this morning before my normal getting up time, I was immediately worried. It was my son, calling to tell me that my grandson, Owen, was moved to intensive care during the night. And then he cried.

Owen went into the hospital last Friday to have routine tonsilectomy. How many young children have this done every single day and then go home and  eat popscicles for a couple of days? I have never heard of anyone having serious complications from such a routine proceedure.

It all started when the little guy aspirated some fluid into his lungs during the surgery. He has been treated for pneumonia and MRSA since then, with first one anti-biotic and then another for almost a week. I don’t know as I sit in the Atlanta airport waiting for my flight to DC exactly what happened during the night, but they are talking about doing a tracheotomy and “intervention” which involves placeing a tube down his throat to help him breathe.

Please keep Owen, his Mom and Dad, and the rest of our family in your thoughts and prayers. I’ll update as soon as I know more. Thank you.